Hi mates, I hope you all have been well and that you are kicking off summertime in the greatest way feasible!
So quite a few of you have achieved out to request how Dominic is executing and even though I share a speedy image on Instagram tales once in a while, I desired to pop in swiftly to give you an update.
Considering that I final wrote, Dominic has accomplished cycles two and 3 of chemotherapy. Each designed him sick a single day of the remedy but with a tweak of the nausea meds, he was feeling much better.
His new favorite in-healthcare facility action? Tunes therapy! He receives these kinds of a large kick out of playing the instruments 😁
He is also Incredibly into daily bingo 😍
On the previous working day of his 2nd cycle, he had the prospect to tour the helicopter pad on the clinic roof, which he Cherished. The view was astounding and we learned loads of entertaining points (mom loves a fantastic area journey, ha)!
While household, he carries on to engage in and quite considerably enjoys everyday living as usual, which include a lot of outside time now that it’s nice out!
In between rounds two and three of chemotherapy, we traveled to New York for Dominic to be viewed at Memorial Sloan Kettering, where by they have a group of pediatric oncologists who specialize in neuroblastoma.
He is becoming addressed under their direction, so significantly obtaining all of his chemotherapy listed here in Pittsburgh, but we will travel there for his tumor removing surgical treatment.
We equally had our initial Uber journey, had Shake Shack for the first time (SO Great), and Dominic had his initially continue to be in a resort. A productive vacation, but there is genuinely no area like residence!
Our New Normal
We are obtaining pretty applied to the signs of reduced hemoglobin (two days in a row of taking a lot more consume breaks than normal while playing outside the house? We guessed he was going to want blood when he went to his clinic appointment the up coming day and, sure adequate, he did) and very low platelets (much more bruising). He has experienced numerous transfusions of both equally given that starting this journey, so a fantastic big thank you to any individual who has at any time donated blood, as we are now so a great deal a lot more acutely mindful of the significance of this selfless act.
Hemoglobin, platelets, white cell counts, neutrophils, and ANC quantities are now just frequent dialogue in this article.
We’ve all kind of settled into our new program of remedies, excursions to the medical center, running remedies, line flushing, and many others.
The largest hurdle due to the fact this very last cycle of chemotherapy is that we have experienced to give Dominic day-to-day shots (vs the one-time pictures right after the initially and 2nd rounds) and it is the complete worst. He has often hated photographs and he just dreads them, I get nervous, and it is just a entire SCENE. The day by day pictures had been utilized mainly because of his impending stem cell harvest, to assure his counts were being sturdy (see under).
Up coming Techniques
This coming week, Dominic will have a stem mobile harvest, wherever they will insert a short term line to extract stem cells (which will then be stored) must he need to have them in any ability throughout therapy down the road. It is our hope that he would not, but they will be there if he does.
The next big move is in two weeks when he will have his tumor removing medical procedures. Adhering to the medical procedures, he will have one more round of chemotherapy and then a few weeks just after that, a battery of assessments and scans to see where we stand with the sickness.
Be sure to continue on to pray that the most cancers is responding to cure, that the surgeons are equipped to eliminate the tumor safely and securely and successfully, and that he has a relatively simple restoration.
Fun at Home…
A number of more pics of the youngsters from recent months ❤️
Wishing you all a entertaining and safe start out to your summer season! ☀️❤️